Future of hearing services in Australia

Good news about hearing assistance in aged care

Deafness Forum of Australia is deeply concerned about the continuing, widespread lack of recognition and effective management of hearing loss in aged care services.

This is despite government accreditation requirements, overseen by the Australian Aged Care Quality Agency, having been in place for two decades.

70% of Australians aged over 70 have some hearing loss.  This increases to around 85% in residential aged care.  However, staff of age care service providers and in hospitals are seldom adequately trained to assist those with hearing loss.

Deafness Forum has highlighted the absence of necessary hearing assistance training for aged care staff – from registered nurses to direct carers and the teams of Quality Surveyors employed by the Australian Aged Care Quality Agency to monitor aged care facilities.

Deafness Forum has, over the past few years, achieved inclusion of hearing assistance in the relevant VET qualifications and has developed a wide range of free training resources – https://www.deafnessforum.org.au/resources/training-resources-in-hearing-assistance-in-aged-care-services-and-hospitals/

However, it is obvious to us that education alone will not overcome the widespread indifference to the needs of hearing impaired ‘consumers’.  Enforcement by the Australian Aged Care Quality Agency is crucial.  Deafness Forum’s position is that it is crucial that the latest Aged Care Quality Standards must make very clear that hearing assistance is an essential requirement and must be taken seriously by providers and quality surveyors.

UPDATE

In August 2018, the Australian Aged Care Quality Agency released its ‘Guidance and Resources for Providers’ to support the new Aged Care Quality Standards which will come fully into effect in July 2019.  The guidance materials are the practical guidelines for aged care service providers and a reference for those that audit the providers.

For the first time, hearing loss has been specifically addressed in the Guidance and Resources for Providers materials.  Hearing references are to found throughout this new Guidance material (view the document here).  Deafness Forum’s ‘Hearing Assistance in Aged Care Best Practice Manual’ is a cited source.

Hearing matters will now be built into the compliance rules, linked to the legislation.  It’s not the solution to all problems in addressing hearing loss in aged care centres and in home care – auditors need to dig deep in their assessments,  but every party will know that programs and procedures in relation to hearing will be examined in the process of certification and therefore Commonwealth funding for providers.  Deafness Forum’s resources and community monitoring will still be needed.  We also need to educate the auditors to ensure proper reviews are done.

Deafness Forum thanks the Minister for Aged Care Ken Wyatt AM and the Australian Aged Care Quality Agency for responding to our concerns.  We acknowledge the tireless voluntary efforts of our members Basil Turner and Emma Scanlan in making a very real difference to the health and wellbeing of Australians in residential aged care.

Hearing health and wellbeing a national health priority

Hearing health doesn’t get the priority needed to address the massive social, health and economic costs of hearing impairment to individuals and society in Australia.

With an ageing population, hearing loss is projected to increase to one in every four Australians by 2050.

In 2017, a parliamentary committee conducted an inquiry into the hearing health & wellbeing of Australia.  In August 2018, the Federal Government announced its response to the 22 recommendations made in the inquiry’s report.  The Government supports only one of the 22 recommendations.  Read the report here

Hearing loss ranks as a major cause of years of healthy life lost due to disability.  A study of the burden of disease by the Australian Institute of Health and Welfare found that adult-onset hearing loss was the fifth highest cause of years of healthy life lost due to disability.

A significant component of acquired hearing loss 37 per cent is due to excessive noise exposure from inappropriate listening behaviours. Spending money on education to prevent hearing loss could be effective in reducing the projected increase.

Hearing loss is associated with increasing age, rising from less than 1% for people aged younger than 15 years to three in every four people aged over 70 years.

Given that a significant component of hearing loss is preventable, there is a clear argument for identifying hearing loss as a national health priority; and for a cross-jurisdictional approach to awareness and preventing and remedying hearing loss.

Key points:

  • hearing health needs to be dealt with as a mainstream health issue.
  • hearing loss increases risk of depression, dementia, blood pressure and heart conditions.
  • the Government, in cooperation with all state and terriritory governments, must create a national strategy to address the enormous social and economic costs of hearing loss, estimated at $15billion every year and growing.
  • this will raise public profile, education, prevention, supports, and research to direct smart, integrated government policy.

You can read our submission to the Government on why hearing heath and wellbeing must become a national priority.

Hearing services in the National Disability Insurance Scheme

Current issues are explored in the following submissions made by Deafness Forum to various inquiries.

  • submission to a parliamentary inquiry into hearing services within the NDIS
  • submission to the Productivity Commission regarding costs of hearing services in the NDIS.

The issue of eligibility

Eligibility for the National Disability Insurance Scheme depends on a person’s age, residency status and disability.  To access the NDIS you must satisfy the following 3 conditions:

  1. be aged under 65 years AND
  2. live in Australia and are an Australian citizen or hold a permanent visa or a Protected Special Category visa AND
  3. have a permanent impairment that significantly affects your ability to take part in everyday activities or have a developmental delay.

The first two criteria are straightforward.  The third point requires further explanation.  The NDIA has provided guidelines to clarify the access arrangements in relation to point 3, the disability requirements.

The easiest way to look at the requirements relating to disability is firstly by age and then by hearing loss.

1. Children and young people aged 0-25 years

Access is streamlined for people in this age group in recognition of the evidence that shows that early intervention supports up to age 26 is critical for people with hearing impairment as the developing brain requires consistent and quality sound input and other support over that period to develop normally and ameliorate the risk of lifelong disability.

For this age group the evidence from an audiologist that shows…

  • auditory neuropathy or hearing loss equal to or greater than 25 decibels in either ear at 2 or more adjacent frequencies, which is likely to be permanent or long term; and

the hearing loss necessitates the use of personal amplification

…should be sufficient to satisfy the access requirements without the need for further assessment.

But what if a person has no auditory nerves?  For participants under 25 years who have a permanent hearing impairment the NDIS operational guidelines states: “The hearing loss of the person necessitates the use of personal amplification.”  It’s confusing but the NDIA said that it does not mean the child has to wear personal amplification.  So, if a child has no auditory nerve and cannot wear a hearing device they will still meet the access criteria.

2. People aged 26 – 65 years

The level of evidence required to support an access request for people in this age group varies according to the degree of hearing loss. The NDIA has developed a list of conditions which are designed to streamline the access process. A person with a permanent hearing impairment of greater than 90 decibels in the better ear (pure tone average of 500Hz, 1000Hz, 2000Hz and 4000Hz) is eligible to join the NDIS without the need to prove that their disability has substantially reduced their functional capacity.  It is accepted that this degree of hearing loss will have a significant impact on the person’s functional capacity.

For people with hearing loss less than 90 decibels, the NDIA has given further guidance on what information is required of the applicant:-

  • People with a permanent hearing impairment of 65 decibels or greater in the better ear must provide evidence that the disability results in substantially reduced functional capacity to undertake communication, social interaction, learning or self-management activities.
  • Hearing impairments of less than 65 decibels in the better ear in conjunction with other permanent impairments (which meet the NDIS access requirements for example vision or cognitive impairments), or where there is evidence of significantly poorer than expected speech detection and discrimination outcomes, may also be considered to result in substantially reduced functional capacity to undertake relevant activities. People in these circumstances may also be eligible to join the NDIS.

Providing good evidence will help the NDIA make the right decision about your eligibility for the NDIS.  The evidence should demonstrate the functional impact of your hearing impairment on different areas of your life.  It could relate to the communication challenges you experience in relation to your employment, education and training, social participation, independence or health and well-being.  Your audiologist may be required to provide the evidence to support your NDIS Access Request, so you need to ensure your audiologist fully understands how your hearing loss is impacting on your daily life.

People have expressed concern about providing ongoing services to people who are not eligible for the NDIS. It isn’t yet clear if there will be any changes to the way the services are delivered. It is also not clear whether all existing groups, including Aboriginal and Torres Strait Islander people, will continue to be able to access services under the Australian Government Hearing Services Program in the longer term such as children who need hearing assessment services.

There will still be people who will miss out on government funded hearing services. People whose hearing loss isn’t considered to have a significant functional impact will not meet the criteria for the NDIS. Unless these people hold a Pensioner Concession Card they will not be eligible for the Australian Government Hearing Services Program either. People on low income – unemployed people, people in part time employment or those with low paying positions – will still have to fund their own hearing services. They generally can’t afford to update their devices, so they may miss employment opportunities due to the lack of financial support for hearing services.

The NDIS and the Australian Government Hearing Services Program are great programs for those who qualify, but there will be people in need who are left behind as they don’t qualify for any funded supports.